HL7 Child Health Work Group


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  • HL7 Child Health Work Group

  • Founded: 2003

  • Leadership: David Classen, MD, Gaye Giannone Dolin, RN, Andy Spooner, MD and Feliciano Yu, MD

  • Participation: Primarily CMIOs, physicians, medical informatics experts and vendor representatives

  • Distribution: 100+ previously on email; listserv unknown

  • Operations: One in person meeting and two webcast meetings in conjunction with HL7 work group meetings; Monthly calls and other calls and webcasts as needed



Functional Data Standards

  • Functional Data Standards

    • Standards for EHR systems include critical child health functions
    • Published EHR system standards for general pediatrics
    • Work was baseline for CCHIT child health certification criteria, other
  • Terminology Data Standards

    • Explored improving terminology systems for pediatrics using AAP policy statements (e.g. SNOMED)
    • Funding not available to support further work
  • Messaging Data Standards

    • Created immunization activity diagrams and story boards – now part of HL7 messaging standards
    • Provided incubation and leadership in HL7 to develop standard for reporting quality measure data – Quality Reporting Document Architecture using HL7 CDA
    • Provided support to create standards-based neonatal care report using HL7 CDA


Improve data standards for health care

  • Improve data standards for health care

    • Build pediatric consensus on new data standards
    • Maintain broad representation and participation in HL7 initiatives on behalf of child health care
    • Participate in relevant national HIT data standards public comment periods on behalf of child health care
  • Influence adoption of pediatric requirements

    • Impact vendor and provider awareness and adoption of adoption of pediatric standards
  • Earn commitment from pediatric stakeholders

    • Secure support and leadership for efforts


EHR Functional Model Release 2

  • EHR Functional Model Release 2

  • Neonatology Functional Profile for EHR Systems

  • Child Health Functional Profile Release 2







www.hl7.org for Child Health Listserv

  • www.hl7.org for Child Health Listserv

  • Monthly Conference Calls



Joy Kuhl

  • Joy Kuhl

  • Principal

  • Optimal Accords, LLC

  • joy@optimalaccords.com

  • Offiice: (818) 308-7063

  • Mobile: (818) 817-1050

  • Administrative Co Chair, HL7 Child Health Work Group

  • On behalf of Alliance for Pediatric Quality

  • AAP, ABP, CHCA & NACHRI







  • Work for consensus and speak with one voice for pediatric quality and health information technology.

  • Endorse and promote projects that advance our objectives for quality and health information technology in children’s health care.

  • Convene stakeholders in children’s health care on key quality and health information technology issues.

  • Advocate for policy, standards, systems, and products that will improve the quality of children’s health care.



Numerous Initiatives Underway to Support National Goals for Adoption and Interoperability of EHR technology

  • Numerous Initiatives Underway to Support National Goals for Adoption and Interoperability of EHR technology

  • Problem: Children are nearly one third of the population. They receive care through HIT in a variety of settings. National efforts are largely adult-focused; Pediatric efforts for influence are sometimes isolated and duplicative.

  • Opportunity: Work together as pediatric HIT community with one strong voice to influence national initiatives and ensure needs of child healthcare are addressed.







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